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Community-based participatory research (CBPR) or
community-engaged research (CEnR) is conducted on many topics: translational
medical research, community health, employment, education, displaced
communities, environmental protection projects, patients seeking information
and opportunities to participate in clinical trials, and many others. Some
communities are defined by region, others are virtual communities of persons
with a shared sense of identity and issues. Much CEnR is conducted with the
aid of communication technology whether it is focused on a geographic or
virtual community. Creating and maintaining effective communication about
the partnership between researchers/research institutions and communities is
a major challenge. Conducting CEnR ethically and effectively requires
various kinds of communication among stakeholders for various purposes. For
example, it involves:
• Educating investigators,
communities, ethics committees, research participants and the media to
prepare them to approach the CEnR project wisely.
• Communicating to
researchers various important lessons learned between “silos” of CEnR which
do not ordinarily read one another’s literature.
• Creating networks with
outside community services, agencies, and individuals who can serve the
research population.
• Planning and organizing
pilot projects (e.g., action research projects) to guide planning of the
main CEnR program.
• Creating user-friendly
electronic media and software to manage communication among stakeholders.
The theme of the
2011 JERHRE-Houston Conference is communication issues and processes
in Community Engaged Research. In keeping with the format of JERHRE
Conferences, this will not be a series of papers divided into topical
groups. Presentations will be highly interactive between presenters
and with the audience. As papers are received, their authors are
introduced to authors of related papers, and creative programs are
planned. To learn more about some of the major topic areas, please
view the Summary of Topics.
View the 2010
Workshop.
View the 2009 Workshop. |
